Patient experience of permanent feeding tube

Background: I was diagnosed with extensive tongue cancer in 2018 and underwent a long operation in mid-November. I had most of my tongue removed and other structures in my mouth such as tonsils also went. I had a bilateral neck dissection. My tongue flap was fashioned...

James’ Story

I could have been quicker at responding to a slight cough and clearing of the throat during the pre Xmas  summer of 2021 – 2022 but didn’t, we were coming out of Covid-19 travel restrictions were being lifted and I  wanted to celebrate Xmas and a new year,...

Dealing with the system

How I managed my communications with Health Professionals I was contacted by many people, registrars, doctors, surgeons, anaesthetists, nurses, administrators, dietitians, oncologists, and anyone else interested in my welfare. At times my thoughts were all over the...

Fitting the mask

The moulding of my face mask at Waikato Hospital 13 March 2024 Like many people, I have always suffered from claustrophobia, and I attended my mask fitting with a heightened degree of anxiety and apprehension. I was so wrong. The two young ladies welcomed my wife and...

Susan’s Story

“I knew I had to keep trying” In  November  2016 I had just finished seven weeks of chemo-radiotherapy for HPV oropharyngeal cancer following tonsillectomy. The treatment was brutal. I felt terrible and completely weak and wiped-out, on morphine, could barely swallow...